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> A Pryaer For Tori, My wonderful Daughter!
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Ríobhca31 
Posted: 16-Mar-2005, 12:42 PM
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Hello Everyone! some of you know me, and some don't, but that's ok. I have had some good advice, and as a result to that, I am asking for your Prayer, and thoughtfulness.

My 11 year old daughter Tori was born with some birth defects. she has a syndrome called Hema Facial Microsomia. she has facial palsy on the right side of her face, and coloboma in the right eye, her right ear is under developed, and trigger thumb on her right hand.

She has seen oodles of specialists, and all the work-up's. So, as a result to that, she has an appoint (April 11th) in Madison to see an ENT Specialist. This Doctor might possibly do the reconstruction of her right ear! (If not, off to Chicago!) she has to have extensive surgeries, we're looking at 5 plus.

If you have any advice or questions, please feel free to comment or ask!

Thank you so much for the time, and God Bless! angel.gif


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susieq76 
Posted: 16-Mar-2005, 12:51 PM
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I will definitely be praying, IrishBecca! Good luck with all of the testing. Let us know how it goes.


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Ríobhca31 
Posted: 16-Mar-2005, 01:23 PM
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Thank you Susie, I will send along updates. happy.gif
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Aaediwen 
Posted: 16-Mar-2005, 08:45 PM
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Best wishes.


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WizardofOwls 
Posted: 16-Mar-2005, 10:03 PM
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My prayers are with you and your wonderful daughter! Give her a kiss from all of us, and tell her just how special she is! smile.gif And her mom's pretty special too! Just keep your eyes and Him and He will carry through!

God bless you my friend!


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Rindy 
Posted: 16-Mar-2005, 11:11 PM
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Ríobhca31, my thoughts and prayers will be with you, Tori and the entire family and friends. Keep the faith...

Slainte
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mariah 
Posted: 16-Mar-2005, 11:50 PM
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I will keep your precious one in my prayers. Keep the faith...Mariah
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Ríobhca31 
Posted: 17-Mar-2005, 01:56 PM
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Thank you all, you are so very kind! She is the bravest girls I know! I will post an update here after the appointment in April!

God Bless you all wub.gif
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DesertRose 
Posted: 25-Mar-2005, 03:44 PM
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Hi Riobhca! I am sorry I am just now seeing this. You will be in my prayers and thoughts as well. Hugs to you and your wonderful daughter.


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Monarchs Own 
Posted: 25-Mar-2005, 05:12 PM
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Will sure keep you in my prayers as well.


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maggiemahone1 
Posted: 26-Mar-2005, 09:26 PM
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I'll be thinking and praying for you and your daughter, I hope the specialist in Madison will be able to help Tori. God's grace is sufficient!

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Ríobhca31 
Posted: 05-Apr-2005, 05:38 PM
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Thank you so much everyone, you are all soo very kind! The big day is coming up (Monday) and I will post what ever news I get! Thank you for the Prayers!

She is nervous, but excited!

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Ríobhca31 
Posted: 18-Apr-2005, 08:07 AM
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UPDATE: Thank you for all your pryers concerning my daughter Tori.

We met with the surgeon, and she is confident that she will be able to do my daughter's surgeries! We are so excited. She has to have some cat scans, but that can be done here in town. So, the surgeries will be in Madison, we will be able to follow up with her in her office in Appleton, and tests can be done here locally in Green Bay.

The surgeries will be in 3 steps. they will have to remove some cartilage from her ribs, shape it, and fixate it to her head ( in the vicinity of where the ear will be), then the the second surgery they will make the contours right, make sure it's even with the other, and that blood flow is right (etc), and the third step will be the "tweaking" stage.

It's more in debth than I can explain, not using big medical terms and things of the like.

This is a big step for all of us. and I will continue to keep all of you who are interested posted. God Bless you all!

Becky doctor.gif
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DesertRose 
Posted: 18-Apr-2005, 04:53 PM
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Thanks Becky for giving us the update. Been wondering. Sounds very promising! I bet that makes your family feel a lot better too. Take care!
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Rindy 
Posted: 18-Apr-2005, 09:12 PM
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Becky, thank you for letting us know. It sounds like a bumpy road ahead. You and your family will be in my thoughts and prayers. Yes keep me posted..you know I care...

Slainte
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