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> Guillain Barre Syndrome, Who knows about this? I'm a survivor
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Patriot1776 
Posted: 27-Oct-2008, 09:24 AM
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This is a condition where a person's immune system attacks their own nervous system instead of foreign antigens that have entered the body. Because of the mechanisms at work, it manifests itself in the person gradually becoming paralyzed, first the person's legs becoming really weak for unexplainable reasons and gradually progresses up the body toward the person's head. If not treated promptly, this syndrome can cause a person to die because it progresses to a point where the autonomic functions of the body (breathing, heartbeat, etc.) start to become severely affected.

Guillain-Barre Wiki

I'm posting this because I am a survivor of this syndrome, as I became effected by it at age 6 and I did suffer some permanent nerve damage from it, the damage being limited to my hands such that they are permanently weakened, despite looking normal.


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Rindy 
Posted: 28-Oct-2008, 03:53 PM
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Thanks for posting this Patriot1776. I haven't heard of this one.

Congratulations for beating this syndrome!!! thumbs_up.gif cheers.gif

Sorry to hear you did get some nerve damage. Again thank you for posting on this.

Slainte
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Patriot1776 
Posted: 28-Oct-2008, 05:48 PM
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Your welcome. I'm not sure if my body reacted negatively to something the doctors gave me in the hospital at the time and something went wrong in the process or what. But because of it, today with my weakened hands there's physically demanding things that I just can't do because it becomes hard to hold onto very heavy objects at those times.
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Bladorteen 
Posted: 10-Nov-2008, 02:54 PM
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Patriot1776, if it is not a secret how old are you? And what were you treated with?
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danceswithblades 
Posted: 12-Nov-2008, 09:10 PM
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Patriot 1776,
Given the age that you got GBS, likely it was the aftermath either of a childhood illness you picked up at school or an immunization. Very sorry. Some people make a full recovery, some remain hold on for years in a severely impaired state before passing away. Most people survive with some degree of residual loss of function. Have you tried going to an occupational therapist to see what you can do about your hands? Or to a neurologist to do an EMG of your upper extremities? You might get some interesting answers.
Good luck,
Xenobia
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Patriot1776 
Posted: 30-Nov-2008, 09:14 AM
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I'll be turning 26 on December 12, and I now don't remember what I was treated with, it was so, so long ago that it happened. Have to ask the parents about the occupational therapist, don't know if it would help.
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