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Celtic Radio Community > Kirk and Chapel > A Pryaer For Tori

Posted by: IrishBecca30 16-Mar-2005, 11:42 AM

Hello Everyone! some of you know me, and some don't, but that's ok. I have had some good advice, and as a result to that, I am asking for your Prayer, and thoughtfulness.

My 11 year old daughter Tori was born with some birth defects. she has a syndrome called Hema Facial Microsomia. she has facial palsy on the right side of her face, and coloboma in the right eye, her right ear is under developed, and trigger thumb on her right hand.

She has seen oodles of specialists, and all the work-up's. So, as a result to that, she has an appoint (April 11th) in Madison to see an ENT Specialist. This Doctor might possibly do the reconstruction of her right ear! (If not, off to Chicago!) she has to have extensive surgeries, we're looking at 5 plus.

If you have any advice or questions, please feel free to comment or ask!

Thank you so much for the time, and God Bless!

Posted by: susieq76 16-Mar-2005, 11:51 AM

I will definitely be praying, IrishBecca! Good luck with all of the testing. Let us know how it goes.

Posted by: IrishBecca30 16-Mar-2005, 12:23 PM

Thank you Susie, I will send along updates.

Posted by: Aaediwen 16-Mar-2005, 07:45 PM

Best wishes.

Posted by: WizardofOwls 16-Mar-2005, 09:03 PM

My prayers are with you and your wonderful daughter! Give her a kiss from all of us, and tell her just how special she is!

And her mom's pretty special too! Just keep your eyes and Him and He will carry through!

God bless you my friend!

Posted by: Rindy1202 16-Mar-2005, 10:11 PM

Ríobhca31, my thoughts and prayers will be with you, Tori and the entire family and friends. Keep the faith...

Slainte

Posted by: mariah 16-Mar-2005, 10:50 PM

I will keep your precious one in my prayers. Keep the faith...Mariah

Posted by: Ríobhca31 17-Mar-2005, 12:56 PM

Thank you all, you are so very kind! She is the bravest girls I know! I will post an update here after the appointment in April!

God Bless you all

Posted by: CelticRose 25-Mar-2005, 02:44 PM

Hi Riobhca! I am sorry I am just now seeing this. You will be in my prayers and thoughts as well. Hugs to you and your wonderful daughter.

Posted by: Monarch's Own 25-Mar-2005, 04:12 PM

Will sure keep you in my prayers as well.

Posted by: maggiemahone1 26-Mar-2005, 08:26 PM

I'll be thinking and praying for you and your daughter, I hope the specialist in Madison will be able to help Tori. God's grace is sufficient!

maggiemahone1

Posted by: Ríobhca31 05-Apr-2005, 04:38 PM

Thank you so much everyone, you are all soo very kind! The big day is coming up (Monday) and I will post what ever news I get! Thank you for the Prayers!

She is nervous, but excited!

Posted by: Ríobhca31 18-Apr-2005, 07:07 AM

UPDATE: Thank you for all your pryers concerning my daughter Tori.

We met with the surgeon, and she is confident that she will be able to do my daughter's surgeries! We are so excited. She has to have some cat scans, but that can be done here in town. So, the surgeries will be in Madison, we will be able to follow up with her in her office in Appleton, and tests can be done here locally in Green Bay.

The surgeries will be in 3 steps. they will have to remove some cartilage from her ribs, shape it, and fixate it to her head ( in the vicinity of where the ear will be), then the the second surgery they will make the contours right, make sure it's even with the other, and that blood flow is right (etc), and the third step will be the "tweaking" stage.

It's more in debth than I can explain, not using big medical terms and things of the like.

This is a big step for all of us. and I will continue to keep all of you who are interested posted. God Bless you all!

Becky

Posted by: CelticRose 18-Apr-2005, 03:53 PM

Thanks Becky for giving us the update. Been wondering. Sounds very promising! I bet that makes your family feel a lot better too. Take care!

Posted by: Rindy1202 18-Apr-2005, 08:12 PM

Becky, thank you for letting us know. It sounds like a bumpy road ahead. You and your family will be in my thoughts and prayers. Yes keep me posted..you know I care...

Slainte

Posted by: BluegrassLady 18-Apr-2005, 09:46 PM

Hi Becky,
I am just now reading these posts. My friend, the power of prayer is awesome, as you know. With so many prayers going out for Tori and the rest of your family, everything is bound to be fine. My thoughts are with you.

Jan

Posted by: Ríobhca31 16-Jun-2005, 08:22 PM

Thank you for your continued prayers and support. I have not been here in what feels like FOREVER!

A surgery date is set for my daughter Tori. Surgery (#1 of 3) will be July 27th! I can't belive after all this time, the time for the surgery is so near. My husband and I are scared to death, but, I know this is what she needs!

So, as before, Keep us in your prayers! and I will continue to keep you all posted!

Blessings,

Becky

Posted by: MDF3530 16-Jun-2005, 09:15 PM

QUOTE (Ríobhca31 @ 16-Jun-2005, 09:22 PM)

It has been a long time, Becky!

I have nothing but the best wishes for you and your family.

Posted by: CelticRose 18-Jun-2005, 07:12 PM

Wow! Becky. I have been missing you! Prayers and thoughts are with Tori and your family. Keep us posted when you can, ok? Take care!

Posted by: j Padraig moore 23-Jun-2005, 05:25 PM

QUOTE (Ríobhca31 @ 16-Jun-2005, 10:22 PM)

So, as before, Keep us in your prayers! and I will continue to keep you all posted!

Will certainly do!

Posted by: Rindy1202 23-Jun-2005, 07:31 PM

Oh Becky you and Tori are and will be in my prayers- God is never wrong!! Keep us posted...

Bless you all