Welcome Guest ( Log In | Register )










Reply to this topicStart new topicStart Poll

> Chron's Disease
CelticRadio 
Posted: 13-Aug-2009, 08:22 PM
Quote Post

Member is Offline



Celtic Guardian
Group Icon

Group: Administrator
Posts: 9,748
Joined: 23-Sep-2001
ZodiacOak

Realm: Toronto, CAN

male

Medieval Kingdom
Rank #74
223,021 Gold!






Here is a quick update on my daughter. After about 10 months of dealing with 3 different medical providers and 2 major Boston hospitals, we finally figured out why she was not growing - she has been diagnosed with Chron's Disease. Here is a little slide show about her:

http://www.videocelt.com/musicvideo.php?vid=7775c7648

The bad thing is we have been complaining to her pediatrician for 3 years about symptoms, but he kept saying she will grow. She did not. 10 years old and she looked like a 6 or 7 year old.

Thank God for Boston Medical. With a diagnosis, a great medical staff and a treatment plan she has gained almost 10 pounds and grown 2 inches in a few short months. Its going to be a life long battle, but she is on her way.

Please all parents reading this, if your child does not grow and looks much younger than their stated age be sure to ask your pediatrician about Chrons/Colitis/Celiec Disease or Thyroid disease. If they discount it, and in your guy something tells you there is something wrong, keep pursuing it with other medical providers.


--------------------
Celtic Radio DJ
http://www.CelticRadio.net
Celtic Radio Music Network
PMEmail PosterUsers Website My Photo Album               View my Facebook Profile.View my Linked-In Profile.View my Google plus Profile.View my Twitter Profile.View My Space Profile.View my YouTube Profile.
Top
dundee 
Posted: 13-Aug-2009, 10:24 PM
Quote Post

Member is Offline



Celtic Guardian
********

Group: Celtic Nation
Posts: 1,176
Joined: 01-Aug-2003
ZodiacReed


male





mac i am so sorry to hear this! on the bright side she is just plain beautiful!!

Not to pick on the doctor(s) but slow growth is one of the major symptoms of chrons in children... but then again i always thought that is more of a senior thing.

I am glad it is diagnosed and under control.

my prayers for Michaela and you and your wife.

peace


--------------------
jim

www.greyaengus.com

"If I say something that can be interpreted in two ways, and one of the ways makes you sad or angry, I meant it the other way."

often in error, never in doubt.

if guns kill people then my pencil mis-spells words
quote: larry the cable guy

sometimes what ya think ya want
isnt what ya thought ya wanted
till ya get what ya thought ya wanted
and then what ya had is gone....
PMEmail PosterMy Photo Album               
Top
Camac
Posted: 14-Aug-2009, 07:00 AM
Quote Post




Guest


Main: Registration
Questions: Help
Important: Rules
Messages: Search






Zodiac








Mac;

You have both my sympathy and my prayers that your little angel gets well. Even though my oldest daughter is 39 she was just diagnosed with Ulcerative Colitis. At first they thought it was Crohns Disease so I have a small inkling of what you are going through. May the Creator of All watch over and protect you and your Family.


Camac

Eids O' Eids.
               
Top
Rindy 
Posted: 14-Aug-2009, 12:21 PM
Quote Post

Member is Offline



Braveheart Member
******

Group: Celtic Nation
Posts: 128
Joined: 27-Jan-2004
ZodiacBirch


female





Wishing you and your family well wishes. Michaela is a beautiful girl. I am so glad that you got the final diagnosis that is so very important. It's good to hear she is gaining weight. Please keep us posted on how she is doing and also yourself and your family.

Any information about this disease could also benefit someone as you say that the doctors may miss the diagnosis. All of you will be in my thoughts and prayers.

Slainte

PMEmail Poster               
Top
MacFive 
Posted: 04-Nov-2009, 07:34 PM
Quote Post

Member is Offline



Celtic Guardian
Group Icon

Group: Super Moderator
Posts: 199
Joined: 18-Aug-2007
ZodiacOak


male

Medieval Kingdom
Rank #105
194,121 Gold!






Well the good news is after 3.5 months on an all pediasure diet we were finally able to introduce food into her diet last week. She was so excited she licked her plate clean! smile.gif

She can only have chicken, rice and sweet potatoe for the next week and still maintain her 6-7 pediasure's a day. She is growing and we are delighted to have a different more energetic kid blooming before our eyes!

The doc gave her special permission for a cupcake for her Birthday (in October) and she took a few friends to get their hair done fancy at a haircutting place for kids.

We plan on joining the Chrons and Colitis organization and send her to camp with some other kids who share the same struggles. Thanks for everyones well wishes and prayers!
PMEmail PosterMy Photo Album               
Top
Rindy 
Posted: 10-Nov-2009, 08:19 PM
Quote Post

Member is Offline



Braveheart Member
******

Group: Celtic Nation
Posts: 128
Joined: 27-Jan-2004
ZodiacBirch


female





What wonderful news. Sounds like she had a good time on her birthday. I think it's a great idea about the organizations. I think camp would really be a help for her. Just to know your not alone would be such a relief. This has to be hard on all of you. It would be good if you and the rest of the family could find a support group. Please keep us informed. thumbs_up.gif

Slainte
PMEmail Poster               
Top
Patch 
Posted: 11-Nov-2009, 02:30 AM
Quote Post

Member is Offline



Celtic Guardian
********

Group: Celtic Nation
Posts: 7,710
Joined: 22-Dec-2002
ZodiacIvy

Realm: America, Mid West

male





Great news!! She will always have to watch her diet as you know but kids are adaptable. We as adults would fight the dietary changes. I will keep her and your entire family in my prayers.

Slàinte,    

Patch    
PMEmail Poster               
Top
0 User(s) are reading this topic (0 Guests and 0 Anonymous Users)
0 Members:

Reply to this topic Quick ReplyStart new topicStart Poll


 








© Celtic Radio Network
Celtic Radio is a TorontoCast radio station that is based in Canada.
TorontoCast provides music license coverage through SOCAN.
All rights and trademarks reserved. Read our Privacy Policy.








[Home] [Top]